ROLLERCOASTER

I guess this is how it goes......up and down.....up and down. Brayson has been doing so well. He has been taking his bottles like a champ, sleeping well, and making plenty of dirty diapers for us! He passed his carseat angle tolerance test a couple of days ago, and we were being told that he would be coming home with us today. But then he started desating on all of his bottles last night....he has desated on every bottle since 6:00 pm yesterday. For those who don't know - a desat is when his heart rate drops and his oxygen saturation goes down. His face starts changing colors from a nice pink color to a dusky kind of bluish color. It takes stimulation to bring everything back up again. He is doing this because he is getting choked up on his bottles. We don't know now how long it will take for him to be ready to come home. I believe the doctors may do a swallow test later on. Today will be a long day....he is getting an eye exam, another head ultrasound, and possibly a swallow exam. And my guess is that the feeding tube is going back in his nose. All of this is making me super emotional. It's difficult to focus on anything right now besides him. Please keep us in your prayers. I am so ready for him to come home, but I don't want him to come home before he is ready. I am so glad this all happened before he came home with us. Please pray for a positive outlook and patience for myself and for Jeremy. Pray for Brayson to get eveything together in his own time, and pray for any exams he will have to undergo to have good results.

Thank you, and we love you all.

Crystal